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Registry of Sarcoidosis Associated Pulmonary Hypertension (RESAPH)

Description

Brief Summary
Registry to follow patients with sarcoidosis associated pulmonary hypertension


Detailed Description
This is a multi center registry of sarcoidosis associated pulmonary hypertension (SAPH). With this registry, the investigators will characterize the demographics, clinical course, hemodynamics, pulmonary physiology, and disease management of sarcoidosis associated pulmonary hypertension on the United States. The investigators will also compare these features to non-US sites.

Phase

N/A

Inclusion and Exclusion Criteria

  • Patients with sarcoidosis as defined by the ATS/WASOG statement
  • Patients with pulmonary hypertension as confirmed by right heart catheterization
  • Patients willing to provide written informed consent

  • Unwillingness to provide assurance that they will complete the follow up visits for the study

Sites

Please contact Lynn Fukushima to learn more about where you can participate in this trial. Please use the contact form on the right side.

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