Lupus patients on Twitter: What do they think about using Twitter to engage them with their health?

Purpose

It is estimated that at least 5 million Americans have the autoimmune disease lupus, with more than 16,000 new cases of lupus being reported annually in the U.S. Many patients take to Twitter to share their disease experience. With this study, we want to better understand Lupus patients who use Twitter and hear from them whether Twitter could be used as a tool to engage them with healthcare and research. This study is restricted to Lupus patients on Twitter who were contacted by the study team.

The survey will take about 5 minutes to complete.

Keywords: lupus, survey, twitter

Study Sites

This is a virtual study. Participation is not limited to a location.

 
  • Men & Women
Age icon
18 +
 
 
OR
 

What's involved?

Study length
Number of visits

  • None

Prescription
    None
Procedures

  • 10-question survey

Compensation

  • Raffle to win gift card

Medical cost coverage

  • There is no cost to you for taking part in this study.

Why participate?

Ozu0skltza5rgk5xmdgc

The goal of this research study @USC is to better understand the views of #Lupus patients who use Twitter.

About This Study

Privacy/Confidentiality: The survey is anonymous and all survey results will be reported without identifying information so that no one viewing the results will ever be able to match you with your responses. The members of the research team, the funding agency and the University of Southern California’s Human Subjects Protection Program (HSPP) may access the data. The HSPP reviews and monitors research studies to protect the rights and welfare of research subjects.

Data storage: The data will be retained in a secure database called REDCap at the University of Southern California. The anonymous data will be kept for future research. If you do not want your data to be kept, you should not participate in this study. 

Voluntary participation: Your participation in this survey is entirely voluntary and anonymous.

Contact Information: You may contact the Principal Investigator, Katja Reuter, at katja.reuter@usc.edu with any questions, concerns, or complaints about the research or your participation in this study. If you have questions about your rights as a research participant, please contact the USC Institutional Review Board (USC IRB) at 323-442-0114 between the hours of 8:00 AM and 4:00 PM. (Fax: 323-224-8389 or email at irb@usc.edu). You may also write to the USC Institutional Review Board at 1640 Marengo Street, Suite 700, Los Angeles, CA 90033.

Study Team

Photohandler
Principal Investigator
Katja Reuter, PhD

For questions about this study, contact:

  • IRB number: HS-19-00048
  • Study posted on: TBD
  • Recruitment period: TBD

We respect your privacy!

All the information you give us is stored in a secure, password protected database. All the information that you choose to share will be kept private and confidential. Read University of Southern California's Privacy Policy here.