All of Us Research Program
Purpose
The All of Us Research Program is a historic effort to gather information from one million or more people living in the United States. All of Us is a research program funded by the National Institutes of Health (NIH). The mission of the All of Us Research Program is to accelerate health research and medical breakthroughs, enabling individualized prevention, treatment, and care for all of us.
Keywords: observational, precision medicine, surveys, health surveys, physical measurements, biosamples, initiative, diversity, personalized medicine, individualized medicine, dna, genetic, genomic, saliva, inclusive. database, biorepository
Study Sites
The Wellness Center, 1200 N State St #1008, Los Angeles, CA 90033
- Men & Women
All of Us aims to engage a community of participants that reflects the diversity of America. We welcome participants both healthy and sick, of all backgrounds and walks of life, from all regions across the country.
Anyone 18 years or older is welcome to participate in the All of Us Research Program.
You can email the study team at allofus@usc.edu or call us at 323-572-5740.
What's involved?
-
Our plan is that All of Us will last for at least 10 years. We hope you will stay involved for as long as you can. If you do, researchers may better understand what causes changes in our health and what we can do about it. If you join, you can withdraw at any time, for any reason, without penalty.
-
We require one in-person visit of about 30 minutes to 1 hour. After this visit, we may ask that you provide online updates to your health and lifestyle information from time to time. The entire research program is designed to last 10 years or more.
-
None.
-
Compensation and parking validation for the day of your visit is available for successful completion of your study enrollment.
-
There is no cost to participate other than some of your time. Most people will spend no more than a few hours a year taking part in the program's activities.
-
Please note, the All of Us Research Program is a research study and does not provide medical care, medical advice or medical treatment.
Why Participate?
The All of Us Research Program Anthem
By engaging participants over the long term, we can gather more information and learn more about how health and disease change over time. If you join All of Us and provide biosamples, like blood or saliva, you may choose to learn more about your DNA: your genetic ancestry, your risk for certain hereditary diseases, and your body's reaction to certain medicines.
Eligibility
Must have
- Enrollment is open to those older than 18 years old who reside in the United States. People of every race, ethnicity, sex, gender, and sexual orientation are welcome.
Can't have
- Those who are not eligible to join at this time include people who are: in prison, unable to consent on their own, and younger than 18. In the future, we hope to enroll these populations.
About This Study
BENEFITS AND RISKS OF PARTICIPATING
- You will not get direct medical benefit from taking part in All of Us.
- If you join All of Us and provide your biosamples (such as blood, saliva, and/or urine), we will analyze your DNA for research. This may take some time. When we process your DNA, we will be able to check your DNA for information that you may be interested in. Some examples include ancestry, traits, or certain health-related DNA results that you can then discuss with your health care provider.
- You will be able to choose whether to get your DNA results.
- You will be able to talk with a genetic counselor from our Genetic Counseling Resource about your DNA results.
- You will be helping researchers make discoveries that may help future generations.
- The main risk of taking part in All of Us is to your privacy. A data breach is when someone sees or uses data without permission. If there is a data breach, someone could see or use the data we have about you.
- We will gather data from you through the All of Us app and/or website. You may be asked to wear a fitness tracker. There is a risk to your privacy whenever you use an app, website, or fitness tracker.
- Researchers will use basic facts like your race, ethnic group, and sex in their studies. This data helps researchers learn if the things that affect health are the same in different groups of people.
- If you give a blood sample, the most common risks are brief pain and bruising. Some people may become dizzy or feel faint. There is also a small risk of infection.
- Taking part in All of Us may have risks that we don't know about yet. We will tell you if we learn anything that might change your decision to take part.
How to Sign Up
To start your journey, go to JoinAllofUs.org/USC and:
1. Create an account
2. Give your consent
3. Agree to share your electronic health records
4. Complete the Consent to Get DNA Results
5. Answer health surveys
6. Schedule a visit to have your measurements taken (height, weight, blood pressure, etc.) and give blood and urine samples, if asked.
Study Team
For questions about this study, contact:
- Project Manager Tara Knight, PhD
- knight@usc.edu
- Principal Investigator Sue Kim, PhD, MPH
- sueekim@usc.edu
Research study materials
We respect your privacy!
All the information you give us is stored in a secure, password protected database. All the information that you choose to share will be kept private and confidential. Read University of Southern California's Privacy Policy here.